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RARE / D

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  • Home
  • RARE/D Podcasts
    • RARE/D Podcasts intro
    • Where to listen
    • S1/E1 – 100,000 Genomes
    • S1/E2 – Genetics changing healthcare
    • S1/3 – Families genetic stories
    • S1/E4 – Rare discoveries
    • S1/E5 – how RARE are you?
    • S1/E6 – Rare Covid times – China
  • RARE/D LIVE
  • News/Blog
  • About The Whitworth Group

RARE / D

  • Home
  • RARE/D Podcasts
    • RARE/D Podcasts intro
    • Where to listen
    • S1/E1 – 100,000 Genomes
    • S1/E2 – Genetics changing healthcare
    • S1/3 – Families genetic stories
    • S1/E4 – Rare discoveries
    • S1/E5 – how RARE are you?
    • S1/E6 – Rare Covid times – China
  • RARE/D LIVE
  • News/Blog
  • About The Whitworth Group

International conversations during rare times – China (S1/E6)

In a change from our usual podcast recordings, we talk over Zoom with Prof Jie Ding of Peking University First Hospital, supported by guest listener Prof Tao Wang in the...
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Just how RARE are you? (S1/E5)

A very special live recording at The Whitworth Art Gallery in Manchester where our group first met - we chat about the human genome with Genetic Counsellor Sasha Henriques and...
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How could rare gene discoveries/diagnoses impact on your life? (S1/E4)

In our 4th episode we chat to Professor Dian Donnai, Sally Hatton, and Professor Andrew Read about the many topics around the scientific discoveries the importance of thinking about the...
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Discussions about HD within families and the choices we make in life (S1/Ep3)

In a very different episode, we chat with our very own Jay Roche and his wife Sarah about the family's...

Ethical dilemmas in Genomic testing: rare or not so rare? (S1/Ep2)

In our second episode we talk to Dr John McDermott, Professor Margaret Brazier, Rachel Mahood, and Rachel Corry about ethical...

Rare opportunities and how will the 100,000 genome project change health care? (S1/Ep1)

In our first (pilot) episode we talk with Professor Bill Newman from Manchester about Rare opportunities and how will the...

About The Whitworth Group

About the group The Whitworth group (Mariangels Ferrer-Duch, Nichola Garde, Nick Jordan, Rhona MacLeod, Romona Moldovan, Jay Roche, Fiona Ulph)...

The Whitworth Group

Nichola Garde
Podcast Host

Broadcasting & communication expertise, patient & public involvement.

Mariangels Ferrer
Podcast Host

Clinical psychology & narrative therapy.

Nick Jordan

Production & Filming.

Rhona MacLeod

Genetic counselling, psychological impact of rare disorders.

Ramona Moldovan

Clinical psychology & genetic counselling.

Jay Roche

Creative and digital production, patient involvement.

Fiona Ulph

Psychological and ethical impact of genetic results on individuals’ and societal reactions.

October 7, 2019February 27, 2020 breakcreativepartners_w00a3h26

Rare/D Podcasts

Our varied conversations started December 2019 and are now available across all the popular platforms including iTunes and Spotify.

Listen here on the website or find on your chosen platform from our handy "Where to Listen" page.

Listen to all episodes now!

AND WITH MOVING PICTURES!

You can also watch and subscribe on our YouTube channel...

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Quick links

  • LISTEN NOW! – International conversations during rare times – China (S1/E6)
  • LISTEN NOW! – Just how RARE are you? (S1/E5)
  • LISTEN NOW! – How could rare gene discoveries/diagnoses impact on your life? (S1/E4)
  • LISTEN NOW! – HD within families and the choices we make (S1/Ep3)
  • LISTEN NOW! – Ethical dilemmas in Genomic testing (S1/Ep2)
  • LISTEN NOW! – How will the 100,000 genome project change health care? (S1/Ep1)
  • RARE/D Podcasts – where to listen

Available on popular platforms…

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