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RARE/D

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  • Home
  • RARE/D Live Special 2022 – MND
    • MND – new test directory and families
  • RARE/D Podcasts
    • RARE/D Podcasts intro
    • Where to listen
    • S1/E1 – 100,000 Genomes
    • S1/E2 – Genetics changing healthcare
    • S1/3 – Families genetic stories
    • S1/E4 – Rare discoveries
    • S1/E5 – how RARE are you?
    • S1/E6 – Rare Covid times – China
    • S1/E7 – Rare Covid times – India
    • S1/E8 – Rare Covid times – Romania
    • S1/E9 – Rare Covid times – Mediterranean
    • S1/Ep10 – How Rare is your Baby?
    • Just how rare are Rare Cancers? – Special Live Event in 2021
  • RARE Film
  • About The Whitworth Group

RARE/D

  • Home
  • RARE/D Live Special 2022 – MND
    • MND – new test directory and families
  • RARE/D Podcasts
    • RARE/D Podcasts intro
    • Where to listen
    • S1/E1 – 100,000 Genomes
    • S1/E2 – Genetics changing healthcare
    • S1/3 – Families genetic stories
    • S1/E4 – Rare discoveries
    • S1/E5 – how RARE are you?
    • S1/E6 – Rare Covid times – China
    • S1/E7 – Rare Covid times – India
    • S1/E8 – Rare Covid times – Romania
    • S1/E9 – Rare Covid times – Mediterranean
    • S1/Ep10 – How Rare is your Baby?
    • Just how rare are Rare Cancers? – Special Live Event in 2021
  • RARE Film
  • About The Whitworth Group

RARE/D Live Special 2022 – MND

MND - a new test directory and family implications Thank you to our virtual live audience for a special podcast recording that coincided with Rare Disease Day 2022. Follow the...
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RARE FREQUENCIES

Our very own Nick Jordan made this amazing short film from soundbites taken from Series 1 of our #RareDConversations podcast series, coupled with beautiful imagery taken of rare cotton plants...
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Just how RARE are you? (S1/E5)

A very special live recording at The Whitworth Art Gallery in Manchester where our group first met - we chat...

How could rare gene discoveries/diagnoses impact on your life? (S1/E4)

In our 4th episode we chat to Professor Dian Donnai, Sally Hatton, and Professor Andrew Read about the many topics...

Discussions about HD within families and the choices we make in life (S1/Ep3)

In a very different episode, we chat with our very own Jay Roche and his wife Sarah about the family's...

About The Whitworth Group

About the group The Whitworth group (Mariangels Ferrer-Duch, Nichola Garde, Nick Jordan, Rhona MacLeod, Romona Moldovan, Jay Roche, Fiona Ulph)...

The Whitworth Group

Nichola Garde
Podcast Host

Broadcasting & communication expertise, patient & public involvement.

Mariangels Ferrer
Podcast Host

Clinical psychology & narrative therapy.

Nick Jordan

Production & Filming.

Rhona MacLeod

Genetic counselling, psychological impact of rare disorders.

Ramona Moldovan

Clinical psychology & genetic counselling.

Jay Roche

Creative and digital production, patient involvement.

Fiona Ulph

Psychological and ethical impact of genetic results on individuals’ and societal reactions.

October 7, 2019February 27, 2020 breakcreativepartners_w00a3h26

Rare/D Podcasts

Our varied conversations started December 2019 and are now available across all the popular platforms including iTunes and Spotify.

Listen here on the website or find on your chosen platform from our handy "Where to Listen" page.

Listen to all episodes now!

AND WITH MOVING PICTURES!

You can also watch and subscribe on our YouTube channel...

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Quick links

  • RARE/D Live Special 2022 – MND
  • About The Whitworth Group
  • RARE FREQUENCIES
  • RARE/D Podcasts
  • Just how rare are Rare Cancers? – Special Live Event in 2021
  • RARE/D Podcasts – where to listen

Available on popular platforms…

With special thanks to:

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