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RARE/D

BE PART OF THE CONVERSATION

  • Home
  • ‘Rare Comedy’ – Rare Disease Day 2025
  • RARE/D 2024 – your rare film
  • RARE/D Podcasts
    • RARE/D Podcasts intro
    • Where to listen
    • ‘Rare Comedy’ – Rare Disease Day 2025
    • S1/E1 – 100,000 Genomes
    • S1/E2 – Genetics changing healthcare
    • S1/3 – Families genetic stories
    • S1/E4 – Rare discoveries
    • S1/E5 – how RARE are you?
    • S1/E6 – Rare Covid times – China
    • S1/E7 – Rare Covid times – India
    • S1/E8 – Rare Covid times – Romania
    • S1/E9 – Rare Covid times – Mediterranean
    • S1/Ep10 – How Rare is your Baby?
    • Just how rare are Rare Cancers? – Special Live Event in 2021
  • RARE Frequencies
  • About us

RARE/D

  • Home
  • ‘Rare Comedy’ – Rare Disease Day 2025
  • RARE/D 2024 – your rare film
  • RARE/D Podcasts
    • RARE/D Podcasts intro
    • Where to listen
    • ‘Rare Comedy’ – Rare Disease Day 2025
    • S1/E1 – 100,000 Genomes
    • S1/E2 – Genetics changing healthcare
    • S1/3 – Families genetic stories
    • S1/E4 – Rare discoveries
    • S1/E5 – how RARE are you?
    • S1/E6 – Rare Covid times – China
    • S1/E7 – Rare Covid times – India
    • S1/E8 – Rare Covid times – Romania
    • S1/E9 – Rare Covid times – Mediterranean
    • S1/Ep10 – How Rare is your Baby?
    • Just how rare are Rare Cancers? – Special Live Event in 2021
  • RARE Frequencies
  • About us

‘Rare Comedy’ – a podcast for Rare Disease Day 2025

Rare Comedy - a podcast for Rare Disease Day, February 28, 2025 Presented by The Whitworth Group in collaboration with the Manchester Rare Conditions Centre MRCC In our Rare Comedy...
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RARE/D Special 2024 – your rare film

On February 29, 2024, Rare Disease Day, we invited people across the world who are impacted by rare health conditions, or who are connected with the rare health community, to...
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RARE FREQUENCIES

The Whitworth Group's artist Nick Jordan made this lyrical short film from conversations recorded for Series 1 of our #RareDConversations podcast series, coupled with beautiful imagery taken of a rare,...
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Just how RARE are you? (S1/E5)

A very special live recording at The Whitworth Art Gallery in Manchester where our group first met - we chat...

How could rare gene discoveries/diagnoses impact on your life? (S1/E4)

In our 4th episode we chat to Professor Dian Donnai, Sally Hatton, and Professor Andrew Read about the many topics...

Discussions about HD within families and the choices we make in life (S1/Ep3)

In a very different episode, we chat with our very own Jay Roche and his wife Sarah about the family's...

About The Whitworth Group

About the group The Whitworth Group (Mariangels Ferrer-Duch, Nichola Garde, Nick Jordan, Rhona MacLeod, Romona Moldovan, Jay Roche, Fiona Ulph)...

The Whitworth Group

Nichola Garde
Podcast Host

Broadcasting & communication expertise, patient & public involvement.

Mariangels Ferrer
Podcast Host

Clinical psychology & narrative therapy.

Nick Jordan

Production & Filming
(click link below for website)

Website
Rhona MacLeod

Genetic counselling, psychological impact of rare disorders.

Ramona Moldovan

Clinical psychology & genetic counselling.

Jay Roche

Creative and digital production, patient involvement.

Fiona Ulph

Psychological and ethical impact of genetic results on individuals’ and societal reactions.

October 7, 2019February 27, 2020 breakcreativepartners_w00a3h26

Rare/D Podcasts

Our varied conversations started December 2019 and are now available across all the popular platforms including iTunes and Spotify.

Listen here on the website or find on your chosen platform from our handy "Where to Listen" page.

Listen to all episodes now!

AND WITH MOVING PICTURES!

You can also watch and subscribe on our YouTube channel...

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Quick links

  • RARE/D Live Special 2022 – MND
  • About The Whitworth Group
  • RARE FREQUENCIES
  • RARE/D Podcasts
  • Just how rare are Rare Cancers? – Special Live Event in 2021
  • RARE/D Podcasts – where to listen

Available on popular platforms…

With special thanks to:

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